TBI Resources
Including International, National And New York State Based Organizations
Many people who are concerned about an actual or potential brain injury do not know how to locate the organizations and find resources that can provide information and actual help. This section identifies and provides links to 50 resources that will help identify important issues, answer many questions and, overall, make you a better advocate for those who need help.
1. Alzheimer’s Association Tel: (800) 272-3900
2. American Academy of Neurology Tel: (800) 879-1960
3. American Academy of Physical Medicine and Rehabilitation Tel: (847) 737-6000
4. American Association of Neurological Surgeons (AANS) Tel: (888) 566-2267
5. American Brain Coalition Tel: (763) 557-2913
6. American Chronic Pain Association Tel: (800) 533-3231
7. American College of Emergency Physicians (ACEP) Tel: (800) 798-1822
8. American Congress of Rehabilitation Medicine (ACRM) Tel: (703) 435-5335
9. American Headache Society (AHS) Tel: (856) 423-0043
10. American Neuropsychiatric Association (ANPA) Tel: (313) 874-6779
11. American Occupational Therapy Association, Inc. Tel: (301) 652-6611
12. Association of Academic Physiatrists Tel: (410) 654-1000
13. Betty Clooney Center Tel: (562) 938-9005
14. Brain Injury Association of America (BIAUSA) Tel: (800) 444-6443
15. Brain Injury Association of New York (BIANYS) Tel: (518) 459-7911
16. Brain Injury Hub (UK) Tel: (011) 01737 365 000
17. Brainline Tel: (703) 998-2020
18. Brain Trauma Foundation Tel: (212) 772-0608
19. Center of Excellence in Medical Multimedia Virtual Library Tel: (719) 333-7565
20. Centers for Disease Control and Prevention (CDC) Tel: (800) 232-4636
21. Congressional Brain Injury Task Force Tel: (202) 225-5751
22. The Dana Foundation Tel: (212) 223-4040 (Based in New York State)
23. Defense Centers of Excellence for Psychological health and Traumatic Brain Injury Tel: (301) 295-3257
24. Defense And Veterans Brain Injury Center Tel: (800) 870-9244
25. Epilepsy Foundation of America Tel: (800) 332-1000
26. Family Caregiver Alliance Tel: (800) 445-8106
27. HRSA Traumatic Brain Injury Program (US Dept HHS) Tel: (301) 443-9280
28. Institute of Medicine (IOM) Tel: (202) 334-2352
29. International Brain Injury Association Tel: (703) 960-0027
30. International Brain Research Foundation (IBRF) Tel: (732) 494-7600
31. The Mount Sinai Hospital Tel: (212) 241-6500 (Based in New York State)
32. National Association of State Head Injury Administrators (NASHIA) Tel: (802) 498-3349
33. National Disability Rights Network Tel: (202) 408-9514
34. National Headache Foundation (NHF) Tel: (888) 643-5552
35. National Institute on Disability, independent Living, and Rehabilitation Research Tel: (202) 245-7460
36. National Institute of Health (NIH) Tel: (800) 352-9424
37. National Institute of Neurological Disorders and Stroke Tel: (301) 496-3167
38. National Intrepid Center of Excellence Tel: (301) 319-3600
39. National Library of Medicine (MedlinePlus) Tel: (888) 346-3656
40. National Rehabilitation Information Center (NARIC) Tel: (301) 459-5900
41. New York State Dept of Health Concussion Prevention Tel: (518) 473-1143
42. New York State Dept of Health TBI Programs Tel: (866) 881-2809
43. New York University (NYU) Medical Center: Rusk Institute Tel: (212) 263-6034
44. University of Rochester Medical Center Tel: (585) 275-4568 (Based in New York State)
45. Sara Jane Brain Foundation Tel: (212) 576-1180 (Based in New York State)
46. Transitional Learning Center Tel: (409) 797-1455
47. Traumatic Brain Injury National Data and Statistical Center Tel: (303) 789-8202
48. Uniformed Services University of the Health Sciences Tel: (888) 826-3126
49. Upstate Medical University (SUNY) Tel: (315) 464-8986 (Based in New York State)
50. Weill Cornell Medical College: Brain & Mind Research Institute Tel: (212) 746-545 (Based in New York State)
